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The hard thing is knowing when to do what and har far to go. Motherly protective instincts tend to protect the status quo and may deprive a child from betterment. The overly zealous approach may invite complications. The magical thinking tendency hops from one hocus pokus offering to another. So how can we better our odds for improvement at each decisional step? First reduce risks by not chasing after ghosts. Not all FINDINGS are PROBLEMS. Treat problems not findings. Problems are those things which are known to damage anatomy or which reduce function. Given a choice between two options, never trade on function. Words like stronger or straighter or more anatomic do NOT translate automatically into being more functional. When the neurologic condition is considered, a primary mechanism might not be functionally viable. Secondary mechanisms might be more reliable and attainable. Make decisions in view of a specific functional goal. One good way to select goals is to imagine the youngster grown up. What do you see now that would be intolerable later? Intolerable. That's not the same as wishful thinking which would have history rewritten. Selecting to intolerables tends to keep us grounded in both reality and practicality. We are not treating children. We are building adults. Given an intervention plan, there are always two phases, attain and maintain. Seldom are the actions and strategies of maintaining our goal the same as those of attaining the goal. As a generality, it is harder (takes more of something) to attain change than to maintain it. Therapeutic needs after an intervention may well be of lesser scope of force. The smaller scope of maintaining change may seem less significant and thus be set aside. That's a mistake. Do not treat exercise as religion. Do not have faith in exercise or any treatment method for that matter. Exercise must be judicious and monitored. Somehow any given malady regardless of extent can be mentally erased by the word exercise. Exercises which repetatively coerce a resisting part depend on that resistance being weaker than everything else connected to it. If the forces are high, those adjacent structures are more likely to deform in the process. If it feels as if you are pushing hard, you are. Use reason. When doing an exercise, ask what else might happen. Look for it. Think of it this way. If stretching is supposed to be stretching the muscle-tendon unit and in fact it isn't, then something else is being crushed. We have witnessed crushed ankle bones following "aggressive" stretching exercises for equinus. The crushed extruded bone wound up pressing on nearby nerves which had to be surgically decompressed as if caught up in a tumor. The forces required to attain a certain length or posture may well exceed tissue strength in many parts of the body. When using your hands always use your head.
Intervention in cerebral palsy is of several sorts:
PREVENTION: HIPS & KNEES :
The single biggest need is to prevent good hip sockets from going bad. X-rays are vital. We are quite blind in our hip exams. Hips have to be way gone before they feel bad to hands on examination.
So, even with things going well, a single view of the pelvis that shows both hips is needed each year. On the right is the outer surface of the left pelvis. Even in a more mature child, the edge is soft (shown in yellow tint) and more readily damaged by edge pressure.
It should be pointed out that the combination of hip adductor plus hamstring contracture is highly associated with development of hip dysplasia (flattening and loss of socket stability) and vertical orientation.
But there is an additional issue. The direction of the knee is always called the zero point. We measure
from the knee. Below, the green line is a sort of mechanical axis of the knee (an approximation). Notice that the hip end of
If the socket isn't rock solid stable, then rotatory forces may damage the socket rather than nudge rotation into the upper femur. How the leg is turned matters. There is a long history to dancers exercises. But they are based on an assumption of normal deep anatomy. W-Sitting wherein the child sits on the floor between the feet with knees Lesson? Don't wait for x-ray changes to intervene in things we know can go bad and which are set up to go bad. Such as? Hip adduction contracture or sustained high tension, especially in association with flexion will eventually damage the hip joint. Obviously exercises to stretch the hip adductors are good. And remember that hamstrings are strong adductors as well. Include them. Then get real. Stretching exercise is not "exercise", as in weight lifting. It is apull being applied with substantial leverage to tissues. The thing that "stretches" or better stated which "gives" is the tissue most able to give. When fibrosis in the muscle is very strong, it may be stronger than the joint cartilage which will give instead or than mineral poor bone which may crack instead. "Hamstrings stretching exercises" CAN break femur bones or dislocate hips as well. Use reason. Ask, is this much force (which you feel with your hands) really safe? Do I feel the springy give of muscle? Or am I hitting a wall? Know when to fold. What other ways are there to get adductors or hamstrings to elongate with less risky force? Botox is useful if the resistance to stretch is high and if the muscle does feel stretchy. Beware of fibrosis. Fibrosis is like having a piano wire running through the muscle. It takes all the tension. Indeed, one of the reasons muscles can be felt to be weak after "lengthened" is that the unyielding fibrosis was taking all the force and the muscle was doing nothing. A muscle may be both very weak AND very resistive to range (because of the fibrosis). Botox will not soften anything if the main cause of resistance is fibrosis. Fibrosis is very much like scar. Nearly identical, except that it does not require an overt injury to be there. It just forms. About the only thing that lengthens firm fibrosis is dividing it. One half of all the surgery this author does is due to the effects of prolonged sitting. Sitting all day then sleeping fetal posture at night will result in substantial shortening of muscles. Schools often want a doctor's note for exactly how long a child may be out of their chair. It ought to be the other way. Prolonged sitting causes all sorts of problems, problems which lead to a high incidence of surgery and big operations at that. Alternatives to sitting ought to be built into activities. Computers work just fine when the user is standing. We can still grasp the code of Hamurabi when we listen standing.
When knees are apart, in a chair, the ankles ought to be as wide apart and the feet should point outward (not straight ahead). The twist on the legs, caused by pointing feet straight ahead, twists the knees and the hips. SPINE : A child who leans to one side constantly may develop a growth anomaly which grows that way, paralytic scoliosis. Side supports, you would think ought to prevent that. But they have to be very tall and very tight to do so. The reality is that winter and summer clothing, being so different, make tight fitting side supports ineffective. If a child tends to lean to her left, then raise the left side support high. Center the right support at the mid bend and push it way in. Keep the tush centered. Vertically offset side supports are far mor effective and allow clothing thickness to change.
Another source of bogus truncal weakness is jack-knife posture due to tight calf muscles. Equinus tilts the shins backward and the body would fall over backward if not for a balance reaction - flexing at the hips. Here, on the left, a normal volunteer placed into casts which are in "equinus" (toe down) can only stand by hip flexion into jack knife posture. He has no truncal weakness nor hip contractures. To stand erect, the shins must normally - for all of us - forward lean by about 8 to 15 degrees. We call that functional dorsiflexion. So called "neutral position" is 90 degrees and is not functionally neutral. At 90 degrees (square) we fall backward or have to jack knife for balance. To stand erect with so called "neutral" braces, requires a shoe heel which raises the brace heel and thus obtains the forward tilt of the shins required for relaxed balanced stance. ANKLES & FEET : Feet going into "valgus". Everted feet are very common in Whatever. Just know that although the foot can be pulled outward by specific muscle action of everting muscles it can also be trapped or stuck there by secondary shortening of those same muscles after the everted posture is established by the primary cause. The primary cause is usually the "tight heel cord"or "Achilles" or "gastrocnemius" or "calf muscles" or "triceps surae"... so many names for hunk of anatomy. So, to prevent the rocker or pronated (bad word) foot is to maintain supple length of the calf musculature to allow the talus or ankle bone true up down action and not call into play the lower subtalar outward rocker motion. That out rocker motion also exposes the talar head on the inner side of the foot showing as a nasty and tender bump on the inner side of the foot near where the arch is supposed to be. To get rid of that bump the heel needs to be tucked back under the talus which in turn requires (given the Achilles shortening) that the heel be in equinus which started this cycle in the first place. To correct valgus, or pronation, or the inner foot bump requires getting the calf muscle out to length first. What we say is that gastrocnemius or Achilles lengthening is permissive of correction. Foot posture correction then has to be held by some means. Often that means is a brace or shoe insert of some kind. So then, if the everted foot is to be prevented calf muscle must be stretched. It must be kept stretched as the child grows. Attain. Maintain. Serial casts might be used to attain the length. Maybe Botox on top of exercises when exercises are not going well. Or even braces used at night when things have gone well but there is a long growth period remaining. Do not stretch the calf or Achilles by pushing up on the forefoot near the toes. Chances are good you will sublux the midfoot. You must keep the heel under the talus and stay away from the forefoot which will bend easier than the calf will stretch. Also remember that the calf muscle has three parts (hence one of the names = triceps surae). Of those three portions, two of them (gastrocnemius) attach above the knee. If the knee is bent when the exercises are done then only 1 portion of the three part muscle is getting the exercise. That happens to be the least likely portion of the three to get contracture, by the way. Wearing AFOs at night is a great way to keep the calf muscles stretched out when daytime wearing seems too much for functional needs. But braces are only good at maintaining stretch and less good at attaining stretch. Stretching with braces often simply hurts. Skin can take only seven pounds per square inch pressure before breaking down. Also braces have maximum leverage at the forefoot where we least want to push. Summertime camp is wonderful and in September we have a bunch of kids tight from a summer of bliss - braceless bliss. Typically, such short lived tightening can be stretched out with a cast (or two) or a single Botox shot to be followed by resumption of braces to maintain correction. All is not lost and the campfire stories are worth it. EDUCATION & TRAINING : Suffice it to say that at birth, the scope of brain yet to be built is still quite impressive. Brain injury can repair, but it is variable. Function can be reassigned, more so the earlier the deficit. But we have learned that the repair looks to ongoing function to get it right. Education is not just somebody blabbing and somebody else listening. We may have to work around learning or perceptual deficits. Therapies are rich in tricks to convey when communication of want is impaired. Some use a barrage of verbal cues, some use reflex cues (jab here and whoops reaction there gets the ball rolling), or manual or tactile direct hands on puppet-like cueing or using strings and elastics to steady and direct movement. All have great results with kids - different kids. Don't expect a totally deaf kid to do well with verbal cueing. Tactile defensive kids may rebel to being prodded. Theories are fine for opening gambits, but, as in chess, you have to respond to the board. RECONSTRUCTION : See the rest of this web site.
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